International Journal of Endocrinology and Metabolism

Published by: Kowsar

The Experience of Women Affected by Polycystic Ovary Syndrome: A Qualitative Study From Iran

Fatemeh Nasiri Amiri 1 , Fahimeh Ramezani Tehrani 2 , * , Masoumeh Simbar 1 , Ali Montazeri 3 and Reza Ali Mohammadpour Thamtan 4
Authors Information
1 Department of Midwifery and Reproductive Health, Shahid Beheshti University of Medical Sciences, Tehran, IR Iran
2 Reproductive Endocrinology Center, Research Institute for Endocrine Sciences, Shahid Beheshti University of Medical Science, Tehran, IR Iran
3 Mental Health Research Center, Health Metrics Research Centre, Iranian Institute for Health Sciences Research, Tehran, IR Iran
4 Department of Biostatistics, Mazandaran University of Medical Sciences, Sari, IR Iran
Article information
  • International Journal of Endocrinology and Metabolism: April 01, 2014, 12 (2); e13612
  • Published Online: April 1, 2014
  • Article Type: Research Article
  • Received: July 15, 2013
  • Revised: September 29, 2013
  • Accepted: January 29, 2014
  • DOI: 10.5812/ijem.13612

To Cite: Nasiri Amiri F, Ramezani Tehrani F, Simbar M, Montazeri A, Mohammadpour Thamtan R A. et al. The Experience of Women Affected by Polycystic Ovary Syndrome: A Qualitative Study From Iran, Int J Endocrinol Metab. 2014 ;12(2):e13612. doi: 10.5812/ijem.13612.

Abstract
Copyright © 2014, Research Institute For Endocrine Sciences and Iran Endocrine Society. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
1. Background
2. Objectives
3. Patients and Methods
4. Results
5. Discussion
Acknowledgements
Footnotes
References
  • 1. Krysiak R, Okopien B, Gdula-Dymek A, Herman ZS. Update on the management of polycystic ovary syndrome. Pharmacol Rep. 2006; 58(5): 614-25[PubMed]
  • 2. Homburg R. What is polycystic ovarian syndrome? A proposal for a consensus on the definition and diagnosis of polycystic ovarian syndrome. Hum Reprod. 2002; 17(10): 2495-9[PubMed]
  • 3. Tehrani FR, Simbar M, Tohidi M, Hosseinpanah F, Azizi F. The prevalence of polycystic ovary syndrome in a community sample of Iranian population: Iranian PCOS prevalence study. Reprod Biol Endocrinol. 2011; 9: 39[DOI][PubMed]
  • 4. Tehrani FR, Rashidi H, Azizi F. The prevalence of idiopathic hirsutism and polycystic ovary syndrome in the Tehran Lipid and Glucose Study. Reprod Biol Endocrinol. 2011; 9: 144[DOI][PubMed]
  • 5. DuRant EM, Leslie NS, Critch EA. Managing polycystic ovary syndrome: a cognitive behavioral strategy. Nurs Womens Health. 2009; 13(4): 292-300[DOI][PubMed]
  • 6. Diamanti-Kandarakis E, Kandarakis H, Legro RS. The role of genes and environment in the etiology of PCOS. Endocrine. 2006; 30(1): 19-26[DOI][PubMed]
  • 7. McCook JG, Reame NE, Thatcher SS. Health-related quality of life issues in women with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2005; 34(1): 12-20[DOI][PubMed]
  • 8. Goolsby MJ. AACE hyperandrogenism guidelines. J Am Acad Nurse Pract. 2001; 13(11): 492-4[PubMed]
  • 9. Hunter MH, Sterrett JJ. Polycystic ovary syndrome: it's not just infertility. Am Fam Physician. 2000; 62(5): 1079-88[PubMed]
  • 10. Li Y, Yu Ng EH, Stener-Victorin E, Hou L, Wu T, Han F, et al. Polycystic ovary syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from a meta-analysis. Fertil Steril. 2011; 96(2): 452-8[DOI][PubMed]
  • 11. Jones GL, Hall JM, Balen AH, Ledger WL. Health-related quality of life measurement in women with polycystic ovary syndrome: a systematic review. Hum Reprod Update. 2008; 14(1): 15-25[DOI][PubMed]
  • 12. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995; 41(10): 1403-9[PubMed]
  • 13. Streiner DL, Norman GR. Health Measurement Scales: A practical guide to their development and use. 2008;
  • 14. Cronin L, Guyatt G, Griffith L, Wong E, Azziz R, Futterweit W, et al. Development of a health-related quality-of-life questionnaire (PCOSQ) for women with polycystic ovary syndrome (PCOS). J Clin Endocrinol Metab. 1998; 83(6): 1976-87[DOI][PubMed]
  • 15. Malik-Aslam A, Reaney MD, Speight J. The suitability of polycystic ovary syndrome-specific questionnaires for measuring the impact of PCOS on quality of life in clinical trials. Value Health. 2010; 13(4): 440-6[DOI][PubMed]
  • 16. O'Connor A, Gibney J, Roche HM. Metabolic and hormonal aspects of polycystic ovary syndrome: the impact of diet. Proc Nutr Soc. 2010; 69(4): 628-35[DOI][PubMed]
  • 17. Mansson M, Norstrom K, Holte J, Landin-Wilhelmsen K, Dahlgren E, Landen M. Sexuality and psychological wellbeing in women with polycystic ovary syndrome compared with healthy controls. Eur J Obstet Gynecol Reprod Biol. 2011; 155(2): 161-5[DOI][PubMed]
  • 18. Wang S, Alvero R. Racial and ethnic differences in physiology and clinical symptoms of polycystic ovary syndrome. Semin Reprod Med. 2013; 31(5): 365-9[DOI][PubMed]
  • 19. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9): 1277-88[DOI][PubMed]
  • 20. Downe-Wamboldt B. Content analysis: method, applications, and issues. Health Care Women Int. 1992; 13(3): 313-21[DOI][PubMed]
  • 21. Revised 2003 consensus on diagnostic criteria and long-term health risks related to polycystic ovary syndrome (PCOS). Hum Reprod. 2004; 19(1): 41-7[PubMed]
  • 22. Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. Int J qualitative methods. 2002; 1(2)
  • 23. Weiss TR, Bulmer SM. Young women's experiences living with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2011; 40(6): 709-18[DOI][PubMed]
  • 24. Teede H, Deeks A, Moran L. Polycystic ovary syndrome: a complex condition with psychological, reproductive and metabolic manifestations that impacts on health across the lifespan. BMC Med. 2010; 8: 41[DOI][PubMed]
  • 25. Himelein MJ, Thatcher SS. Polycystic ovary syndrome and mental health: A review. Obstet Gynecol Surv. 2006; 61(11): 723-32[DOI][PubMed]
  • 26. Elsenbruch S, Hahn S, Kowalsky D, Offner AH, Schedlowski M, Mann K, et al. Quality of life, psychosocial well-being, and sexual satisfaction in women with polycystic ovary syndrome. J Clin Endocrinol Metab. 2003; 88(12): 5801-7[DOI][PubMed]
  • 27. Ekback M, Wijma K, Benzein E. "It is always on my mind": women's experiences of their bodies when living with hirsutism. Health Care Women Int. 2009; 30(5): 358-72[DOI][PubMed]
  • 28. Liao LM, Nesic J, Chadwick PM, Brooke-Wavell K, Prelevic GM. Exercise and body image distress in overweight and obese women with polycystic ovary syndrome: a pilot investigation. Gynecol Endocrinol. 2008; 24(10): 555-61[DOI][PubMed]
  • 29. Trent ME, Rich M, Austin SB, Gordon CM. Quality of life in adolescent girls with polycystic ovary syndrome. Arch Pediatr Adolesc Med. 2002; 156(6): 556-60[PubMed]
  • 30. Hopwood P, Fletcher I, Lee A, Al Ghazal S. A body image scale for use with cancer patients. Eur J Cancer. 2001; 37(2): 189-97[PubMed]
  • 31. Snyder BS. The lived experience of women diagnosed with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2006; 35(3): 385-92[DOI][PubMed]
  • 32. Boomsma CM, Eijkemans MJ, Hughes EG, Visser GH, Fauser BC, Macklon NS. A meta-analysis of pregnancy outcomes in women with polycystic ovary syndrome. Hum Reprod Update. 2006; 12(6): 673-83[DOI][PubMed]
  • 33. Hahn S, Janssen OE, Tan S, Pleger K, Mann K, Schedlowski M, et al. Clinical and psychological correlates of quality-of-life in polycystic ovary syndrome. Eur J Endocrinol. 2005; 153(6): 853-60[DOI][PubMed]
  • 34. Coffey S, Bano G, Mason HD. Health-related quality of life in women with polycystic ovary syndrome: a comparison with the general population using the Polycystic Ovary Syndrome Questionnaire (PCOSQ) and the Short Form-36 (SF-36). Gynecol Endocrinol. 2006; 22(2): 80-6[DOI][PubMed]
  • 35. Tan S, Hahn S, Benson S, Janssen OE, Dietz T, Kimmig R, et al. Psychological implications of infertility in women with polycystic ovary syndrome. Hum Reprod. 2008; 23(9): 2064-71[DOI][PubMed]
  • 36. Janssen OE, Hahn S, Tan S, Benson S, Elsenbruch S. Mood and sexual function in polycystic ovary syndrome. Semin Reprod Med. 2008; 26(1): 45-52[DOI][PubMed]
  • 37. Rofey DL, Szigethy EM, Noll RB, Dahl RE, Lobst E, Arslanian SA. Cognitive-behavioral therapy for physical and emotional disturbances in adolescents with polycystic ovary syndrome: a pilot study. J Pediatr Psychol. 2009; 34(2): 156-63[DOI][PubMed]
  • 38. Trent ME, Rich M, Austin SB, Gordon CM. Fertility concerns and sexual behavior in adolescent girls with polycystic ovary syndrome: implications for quality of life. J Pediatr Adolesc Gynecol. 2003; 16(1): 33-7[PubMed]
  • 39. Onat G, Beji NK. Marital Relationship and Quality of Life Among Couples with Infertility. Sexuality and Disability. 2012; 30(1): 39-52[DOI]
Creative Commons License Except where otherwise noted, this work is licensed under Creative Commons Attribution Non Commercial 4.0 International License .

Search Relations:

Author(s):

Article(s):

Create Citiation Alert
via Google Reader

Readers' Comments