International Journal of Endocrinology and Metabolism

Published by: Kowsar

The Experience of Women Affected by Polycystic Ovary Syndrome: A Qualitative Study From Iran

Fatemeh Nasiri Amiri 1 , Fahimeh Ramezani Tehrani 2 , * , Masoumeh Simbar 1 , Ali Montazeri 3 and Reza Ali Mohammadpour Thamtan 4
Authors Information
1 Department of Midwifery and Reproductive Health, Shahid Beheshti University of Medical Sciences, Tehran, IR Iran
2 Reproductive Endocrinology Center, Research Institute for Endocrine Sciences, Shahid Beheshti University of Medical Science, Tehran, IR Iran
3 Mental Health Research Center, Health Metrics Research Centre, Iranian Institute for Health Sciences Research, Tehran, IR Iran
4 Department of Biostatistics, Mazandaran University of Medical Sciences, Sari, IR Iran
Article information
  • International Journal of Endocrinology and Metabolism: April 01, 2014, 12 (2); e13612
  • Published Online: April 1, 2014
  • Article Type: Research Article
  • Received: July 15, 2013
  • Revised: September 29, 2013
  • Accepted: January 29, 2014
  • DOI: 10.5812/ijem.13612

To Cite: Nasiri Amiri F, Ramezani Tehrani F, Simbar M, Montazeri A, Mohammadpour Thamtan R A. The Experience of Women Affected by Polycystic Ovary Syndrome: A Qualitative Study From Iran, Int J Endocrinol Metab. 2014 ; 12(2):e13612. doi: 10.5812/ijem.13612.

Copyright © 2014, Research Institute For Endocrine Sciences and Iran Endocrine Society. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License ( which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
1. Background
2. Objectives
3. Patients and Methods
4. Results
5. Discussion
  • 1. Krysiak R, Okopien B, Gdula-Dymek A, Herman ZS. Update on the management of polycystic ovary syndrome. Pharmacol Rep. 2006; 58(5): 614-25[PubMed]
  • 2. Homburg R. What is polycystic ovarian syndrome? A proposal for a consensus on the definition and diagnosis of polycystic ovarian syndrome. Hum Reprod. 2002; 17(10): 2495-9[PubMed]
  • 3. Tehrani FR, Simbar M, Tohidi M, Hosseinpanah F, Azizi F. The prevalence of polycystic ovary syndrome in a community sample of Iranian population: Iranian PCOS prevalence study. Reprod Biol Endocrinol. 2011; 9: 39[DOI][PubMed]
  • 4. Tehrani FR, Rashidi H, Azizi F. The prevalence of idiopathic hirsutism and polycystic ovary syndrome in the Tehran Lipid and Glucose Study. Reprod Biol Endocrinol. 2011; 9: 144[DOI][PubMed]
  • 5. DuRant EM, Leslie NS, Critch EA. Managing polycystic ovary syndrome: a cognitive behavioral strategy. Nurs Womens Health. 2009; 13(4): 292-300[DOI][PubMed]
  • 6. Diamanti-Kandarakis E, Kandarakis H, Legro RS. The role of genes and environment in the etiology of PCOS. Endocrine. 2006; 30(1): 19-26[DOI][PubMed]
  • 7. McCook JG, Reame NE, Thatcher SS. Health-related quality of life issues in women with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2005; 34(1): 12-20[DOI][PubMed]
  • 8. Goolsby MJ. AACE hyperandrogenism guidelines. J Am Acad Nurse Pract. 2001; 13(11): 492-4[PubMed]
  • 9. Hunter MH, Sterrett JJ. Polycystic ovary syndrome: it's not just infertility. Am Fam Physician. 2000; 62(5): 1079-88[PubMed]
  • 10. Li Y, Yu Ng EH, Stener-Victorin E, Hou L, Wu T, Han F, et al. Polycystic ovary syndrome is associated with negatively variable impacts on domains of health-related quality of life: evidence from a meta-analysis. Fertil Steril. 2011; 96(2): 452-8[DOI][PubMed]
  • 11. Jones GL, Hall JM, Balen AH, Ledger WL. Health-related quality of life measurement in women with polycystic ovary syndrome: a systematic review. Hum Reprod Update. 2008; 14(1): 15-25[DOI][PubMed]
  • 12. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995; 41(10): 1403-9[PubMed]
  • 13. Streiner DL, Norman GR. Health Measurement Scales: A practical guide to their development and use. 2008;
  • 14. Cronin L, Guyatt G, Griffith L, Wong E, Azziz R, Futterweit W, et al. Development of a health-related quality-of-life questionnaire (PCOSQ) for women with polycystic ovary syndrome (PCOS). J Clin Endocrinol Metab. 1998; 83(6): 1976-87[DOI][PubMed]
  • 15. Malik-Aslam A, Reaney MD, Speight J. The suitability of polycystic ovary syndrome-specific questionnaires for measuring the impact of PCOS on quality of life in clinical trials. Value Health. 2010; 13(4): 440-6[DOI][PubMed]
  • 16. O'Connor A, Gibney J, Roche HM. Metabolic and hormonal aspects of polycystic ovary syndrome: the impact of diet. Proc Nutr Soc. 2010; 69(4): 628-35[DOI][PubMed]
  • 17. Mansson M, Norstrom K, Holte J, Landin-Wilhelmsen K, Dahlgren E, Landen M. Sexuality and psychological wellbeing in women with polycystic ovary syndrome compared with healthy controls. Eur J Obstet Gynecol Reprod Biol. 2011; 155(2): 161-5[DOI][PubMed]
  • 18. Wang S, Alvero R. Racial and ethnic differences in physiology and clinical symptoms of polycystic ovary syndrome. Semin Reprod Med. 2013; 31(5): 365-9[DOI][PubMed]
  • 19. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9): 1277-88[DOI][PubMed]
  • 20. Downe-Wamboldt B. Content analysis: method, applications, and issues. Health Care Women Int. 1992; 13(3): 313-21[DOI][PubMed]
  • 21. Revised 2003 consensus on diagnostic criteria and long-term health risks related to polycystic ovary syndrome (PCOS). Hum Reprod. 2004; 19(1): 41-7[PubMed]
  • 22. Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. Int J qualitative methods. 2002; 1(2)
  • 23. Weiss TR, Bulmer SM. Young women's experiences living with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2011; 40(6): 709-18[DOI][PubMed]
  • 24. Teede H, Deeks A, Moran L. Polycystic ovary syndrome: a complex condition with psychological, reproductive and metabolic manifestations that impacts on health across the lifespan. BMC Med. 2010; 8: 41[DOI][PubMed]
  • 25. Himelein MJ, Thatcher SS. Polycystic ovary syndrome and mental health: A review. Obstet Gynecol Surv. 2006; 61(11): 723-32[DOI][PubMed]
  • 26. Elsenbruch S, Hahn S, Kowalsky D, Offner AH, Schedlowski M, Mann K, et al. Quality of life, psychosocial well-being, and sexual satisfaction in women with polycystic ovary syndrome. J Clin Endocrinol Metab. 2003; 88(12): 5801-7[DOI][PubMed]
  • 27. Ekback M, Wijma K, Benzein E. "It is always on my mind": women's experiences of their bodies when living with hirsutism. Health Care Women Int. 2009; 30(5): 358-72[DOI][PubMed]
  • 28. Liao LM, Nesic J, Chadwick PM, Brooke-Wavell K, Prelevic GM. Exercise and body image distress in overweight and obese women with polycystic ovary syndrome: a pilot investigation. Gynecol Endocrinol. 2008; 24(10): 555-61[DOI][PubMed]
  • 29. Trent ME, Rich M, Austin SB, Gordon CM. Quality of life in adolescent girls with polycystic ovary syndrome. Arch Pediatr Adolesc Med. 2002; 156(6): 556-60[PubMed]
  • 30. Hopwood P, Fletcher I, Lee A, Al Ghazal S. A body image scale for use with cancer patients. Eur J Cancer. 2001; 37(2): 189-97[PubMed]
  • 31. Snyder BS. The lived experience of women diagnosed with polycystic ovary syndrome. J Obstet Gynecol Neonatal Nurs. 2006; 35(3): 385-92[DOI][PubMed]
  • 32. Boomsma CM, Eijkemans MJ, Hughes EG, Visser GH, Fauser BC, Macklon NS. A meta-analysis of pregnancy outcomes in women with polycystic ovary syndrome. Hum Reprod Update. 2006; 12(6): 673-83[DOI][PubMed]
  • 33. Hahn S, Janssen OE, Tan S, Pleger K, Mann K, Schedlowski M, et al. Clinical and psychological correlates of quality-of-life in polycystic ovary syndrome. Eur J Endocrinol. 2005; 153(6): 853-60[DOI][PubMed]
  • 34. Coffey S, Bano G, Mason HD. Health-related quality of life in women with polycystic ovary syndrome: a comparison with the general population using the Polycystic Ovary Syndrome Questionnaire (PCOSQ) and the Short Form-36 (SF-36). Gynecol Endocrinol. 2006; 22(2): 80-6[DOI][PubMed]
  • 35. Tan S, Hahn S, Benson S, Janssen OE, Dietz T, Kimmig R, et al. Psychological implications of infertility in women with polycystic ovary syndrome. Hum Reprod. 2008; 23(9): 2064-71[DOI][PubMed]
  • 36. Janssen OE, Hahn S, Tan S, Benson S, Elsenbruch S. Mood and sexual function in polycystic ovary syndrome. Semin Reprod Med. 2008; 26(1): 45-52[DOI][PubMed]
  • 37. Rofey DL, Szigethy EM, Noll RB, Dahl RE, Lobst E, Arslanian SA. Cognitive-behavioral therapy for physical and emotional disturbances in adolescents with polycystic ovary syndrome: a pilot study. J Pediatr Psychol. 2009; 34(2): 156-63[DOI][PubMed]
  • 38. Trent ME, Rich M, Austin SB, Gordon CM. Fertility concerns and sexual behavior in adolescent girls with polycystic ovary syndrome: implications for quality of life. J Pediatr Adolesc Gynecol. 2003; 16(1): 33-7[PubMed]
  • 39. Onat G, Beji NK. Marital Relationship and Quality of Life Among Couples with Infertility. Sexuality and Disability. 2012; 30(1): 39-52[DOI]
Creative Commons License Except where otherwise noted, this work is licensed under Creative Commons Attribution Non Commercial 4.0 International License .

Search Relations:



Create Citiation Alert
via Google Reader

Readers' Comments